Still, what I want in my life
is to be willing
to be dazzled—
to cast aside the weight of facts
and maybe even
to float a little
above this difficult world.
I want to believe I am looking
into the white fire of a great mystery.
I want to believe that the imperfections are
nothing—
that the light is everything—
that it is more than the sum
of each flawed blossom rising and fading. And I
do.
from “The Ponds” by Mary Oliver
A friend posted this section of a poem on
Facebook. It speaks to my heart.
I want to be this person, the person who finds
the glory in my story.
The truth is five years into my daughter’s life-altering
diagnosis of moyamoya disease, there are many days I struggle to see past the
world’s imperfections. The weight of what I cannot give her feels overwhelming.
My joy tethers to her wellbeing. Life has taught me bad things happen, and fear
can win my day.
Last week my husband and son-in-law built a
magnificent tree house for my seven-year-old grandson. It is a little over six feet
off the ground nestled between two trees with a sturdy ladder that attaches to
the frame. It sports a large opening at the top of the ladder as a doorway and
a window he can stand at to survey his world.
I smiled as my grandson climbed happily into his
new home. Then I noticed there was no handle at the top of the stairs for my
grandson to steady himself as he pulled himself over the threshold into the
house. My eyes darted next to two small cement steppingstones that were being
used to stabilize the ladder at the bottom of the six-foot drop. My head
flashed to pictures of my three grandsons wrestling in the tree house, a
favorite past time. From there my thoughts shifted to my youngest grandson
being knocked out of the doorway, falling to the ground and hitting his head on
the small cement paver at the base of the ladder. Joy had left the building. As
we headed home that day, my head and my heart were churning.
At what moment, did fear become my lamppost?
When did I become so focused on the safety net, I missed the show taking place
above?
Was it the day the plane hit the Pentagon floors
below the office where my husband was working? Or the day my oldest daughter
had a seizure while snorkeling on a family vacation? Was it the moment I
learned my 40-year-old brother-in-law’s heart stopped forever after making a
goal in a soccer game? Was it the moment I read the words, incurable,
progressive disease causing strokes, or the subsequent ten-hour wait in a
hospital lobby during my daughter’s first brain surgery? Was it the day we
learned she had her first stroke?
At some point, I started focusing on the flaws
in my story and lost the dazzle in my story. At the heart of this poem lives an
undeniable truth. Life is hard. No one is immune to life’s “imperfections,” but
the power we give them in our lives is a choice. I haven’t been choosing so
well lately.
I want to be the person who sees the world
through God’s light and not through my fear.
And I do.
In the wake of my daughter's diagnosis with moyamoya, a rare, incurable and progressive disease, my life altered in ways I was not prepared for. I was fortunate to find an online support group who helped me chart unnavigated waters. Six years in, I am forever changed. I started this site as a way to pay back kindnesses, by sharing my experiences, faith and lessons learned in an effort to help others in the wake of their own life altering events.
Monday, July 12, 2021
Seeing Through God's Light
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